United States
As an experienced project manager, communications strategist, science writer and nonprofit leader, I help healthcare organizations achieve their goals. My strengths include storytelling, strategic planning, digital marketing, patient advocacy and project management.
News and Feature Writing
Cindy Le Mons, NUCDF's longtime executive director who passed away in 2022 (left, shown here with a patient), inspired research that is shedding light on the neurocognitive effects of certain urea cycle disorders.
How are new genetic screening tools offering hope to babies born with life-threatening metabolic disorders? Check out this podcast from DNA Today to learn about new research into faster and more accurate diagnosis of urea cycle disorders (UCD), variants of uncertain significance, life with a UCD, and more.
As managing editor of Mayo Clinic's research magazine, Discovery's Edge, I led a team of science writers and journalists working to tell the story of Mayo Clinic research. This compilation shows several articles developed under my guidance.
Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.
A team of researchers at Cincinnati Children’s is creating new ways to share and manage health data for foster care youth.
Researchers at Cincinnati Children’s have launched a new mobile app that serves as a one-stop shop for parents of children with cancer.
Researchers at Cincinnati Children’s have created a software application and clinical system that taps into the power of electronic medical records to protect hospitalized children from acute kidney injury (AKI).
The Electronic Medical Records and Genomics (eMERGE) project combines genomic research with electronic health records to improve care. This renewed grant represents one of the largest cross-divisional efforts in translational medicine at Cincinnati Children’s.
A boost to cardiac research is on the way for Cincinnati Children’s Hospital Medical Center. A team of researchers has been awarded a $32.5 million, five-year grant to serve as the Administrative Coordinating Center and data hub for the National Institutes of Health’s Bench to Bassinet Program.
A rising tide of mobile devices is making its way into our nation’s healthcare facilities, being carried in the pockets and purses of patients and visitors—and healthcare workers.
Interoperability is a popular word in the world of medical devices, and many believe it is the answer to some of healthcare's thorniest problems.
Equipment managers at children’s hospitals encounter all the same equipment issues found at adult hospitals, with a twist. Very few medical devices are designed specifically for children, because the market for pediatric devices simply isn’t big enough.
Marketing Campaigns
Overview slide set for use by leaders of the Rare Diseases Clinical Research Network in meetings and presentations.
Campaign to recruit participants in survey on impacts of COVID-19 on rare disease patients and families. Web, print, social and email. Resulted in 4000+ responses and 45% increase in website traffic.
Awareness campaign video developed for virtual event, Rare Disease Day at NIH 2021. 2000+ views to date.
Social media & print campaign built around rare disease patient story cards for Rare Disease Day at NIH, 2020. Attracted significant traffic both at the event and online.
Leading rebranding effort for the the NIH's Rare Diseases Clinical Research Network, including the development and launch of a new logo and the rollout of a multi-level branding system to link communication efforts across 20 consortia and 150+ patient advocacy groups.
Ran 5-year recruitment campaign for new graduate program. Print, email, paid social, Google AdWords, in-person, more. Built steady pipeline of well-qualified applicants.
Created a series of student recruitment videos to support a new graduate program in biomedical informatics. Planned series, hired videographers, conducted interviews, promoted series.
Web-based marketing campaign created for George Mason University's Transformative Teaching online graduate program. Landing page, information page, feature story. Campaign still active seven years later.
A series of video interviews with VISTA participants. I planned the series, conducted interviews, and helped edit final videos. See more at https://www.youtube.com/user/VISTAScience/videos.
Print and email campaign targeted at recruiting educators and sponsors for this education research project. Doubled recruitment totals over previous year.
Periodicals
A weekly communication sent to members of the RDCRN network. Catch up on the latest news, NIH announcements, funding opportunities, and upcoming events.
The newsletter of the Rare Diseases Clinical Research Network, an NIH-funded research network of 20 consortia—teams of researchers, patients and clinicians—each focused on a group of rare disorders.
Newsletter for the George Mason University, College of Education and Human Development's center that managed the Virginia Initiative for Science Teaching and Achievement grant project.
Annual report for the Virginia Initiative for Science Teaching and Achievement (VISTA), a statewide partnership among 80+ Virignia school districts, six Virginia universities, and the Virginia Department of Education.
I served as managing editor of this biannual special-topics magazine from 2008-2012. Issues addressed hot topics and featured expert advice from healthcare, industry and government sources.
I served as managing editor of this biannual special-topics magazine from 2008-2012. Issues addressed hot topics and featured expert advice from healthcare, industry and government sources.
Books, Conference Reports and White Papers
Proceedings from the first kick-off meeting of the National Coalition to Promote Continuous Monitoring of Patients on Opioids, where 64 stakeholders committed to eliminating patient harm and death due to opioid-induced respiratory depression.
Report from Healthcare Innovation Day 2014: Igniting an Interoperable Healthcare System, co-hosted by the West Health Institute and the Office of the National Coordinator for Health Information Technology.
White paper aiming to illuminate practices that help others envision a better way as healthcare moves out of the hospital and into the world at large.
For five years now, AAMI senior writer Jill Schlabig Williams has written the snappy, popular Best Practices feature for Biomedical Instrumentation & Technology, AAMI’s peer-reviewed journal. This compilation offers condensed versions of each Best Practice, with tips for making similar bright ideas work.
Starting in 2006, the Johns Hopkins Hospital has taken on several major initiatives to reduce hazardous situations related to alarm systems.
Feature story and full-length book (available hard copy only): The story of how a diverse group of experts who shared an interest in the advancement and safety of medical devices worked together to create a new organization that would ensure that the promise of emerging technology was realized.