With 20 years' experience as a writer and editor for academic and non-profit organizations, I specialize in translating complex research issues into lively, readable prose for lay audiences. I also love writing profiles and human-interest stories across a variety of fields and settings. My clients and employers have included Weill Cornell Medical College, the New York Academy of Sciences, NYU Medical Center, the Crohn's & Colitis Foundation, and the Paul & Daisy Soros Fellowships for New Americans, among others. My work has appeared in The Scientist, the Los Angeles Times, and on numerous health and education websites. I also delight in working with individual authors as a ghost-writer, collaborator, and editor.
With the COVID-19 virus in our midst, the new normal bears little resemblance to life as we knew it just a few short weeks ago. The constraints of social distancing have affected every aspect of our lives. Our homes are now multi-purpose sites where many of us are working, teaching and maintaining our connection with others beyond physical walls.
Teledermatology and telerheumatology allow specialists to treat people with psoriasis or psoriatic arthritis (PsA) who cannot easily travel to a doctor's office - or may simply prefer the convenience of a virtual doctor's appointment. Almost as good as being there Telemedicine can take two forms. Synchronous or live interactive telemedicine takes place in real time.
LRA-Supported Researchers Developed a Model to Predict Full-Blown Lupus Nephritis Down the Road A new study funded by the Lupus Nephritis Trials Network with support from the Lupus Research Alliance has proposed a set of standardized measures that promise to improve the way clinical trials in lupus nephritis (LN) are structured and how clinical researchers report their results.
In an early-phase clinical trial at the National Institutes of Health (NIH), topical treatment with a common skin bacterium called Roseomonas mucosa was seen to reduce AD severity in a small group of adults and children with the disease. This approach-introducing microbes from healthy volunteers to patients with a variety of diseases and conditions-is an emerging part of personalized medicine.
NPF-funded discovery pinpoints possible target for psoriasis treatment
The authors of a new study published in JAMA Dermatology pooled the data from 15 international studies and found that people with AD were approximately 44 percent more likely to harbor suicidal thoughts than those without the disease. AD was also seen to put patients at 36 percent higher risk for making a suicide attempt.
Shirley Wallace was only 15 when she was diagnosed with psoriatic arthritis (PsA). At first, everyone, including her doctors, thought her aching joints were just a matter of "growing pains." But soon, a rheumatologist in Syracuse, New York, broke the news to her family, saying she'd be in a wheelchair for the rest of her life.
Orliderm™ began with an idea. Ten years ago, Dale Pearlman, MD, a dermatologist who practices in Menlo Park, California, happened to see a TED Talk by a postdoctoral fellow at Princeton University who presented her research on a phenomenon called biofilm.
For years, researchers have been looking at probiotics as a possible treatment for atopic dermatitis (AD) in children and adults, but their results have been less than convincing-until now. 2018 may go down in history as the year when the evidence started to come in-evidence showing that probiotics are effective in treating babies and small children with AD.
Last year, a team of researchers from the University of California-San Francisco (UCSF) School of Medicine's Department of Dermatology published the results of a national survey designed to gauge the influence of diet on psoriasis. More than 1,200 members of the National Psoriasis Foundation responded to the survey's 61 questions, with revealing and even surprising results.
Carol Greenspun was told she'd probably outgrow her eczema once she reached puberty. That didn't happen. Then, her doctors predicted she'd find relief during and after pregnancy - another hormonal inflection point - but four pregnancies later, that didn't happen either. More recently, she hoped menopause would shake things up.
When you're in the middle of an eczema flare, do you ever feel like your skin is on fire? The ancient Romans would sympathize. After all, they coined the word inflammare -the Latin root of the English word inflammation-meaning "to set on fire."
Scratching isn't only bad for eczema skin; it also appears to trigger a cascade of immune responses deep inside the digestive tract, according to a study in mice conducted by researchers at Boston Children's Hospital. That cascade ultimately activates immune cells, called mast cells, in the small intestine that are involved in food allergies.
Roughly defined, RNA relays instructions between genes and proteins, telling our cells which proteins to build and how to build them. According to Dr. Enikö Sonkoly, senior author of a study focusing on the link between psoriasis and a particular RNA component, "Scientists used to think that large regions of DNA and RNA were little more than junk, mainly because they didn't seem to match up with specific proteins.
NPF-funded study signals urgent need for screening guidelines for people with psoriatic arthritis.
About a year ago, Alexis Smith received a surprising message via email and Twitter. A global skincare brand wanted to interview her by phone after finding her on Instagram (@eczemalove), and she promptly responded to that request. Next, the brand representative asked Smith to tell her story in a short video, and once again, she followed through.
The eerie absence of historic signage marking the New Deal's achievements in New York City is striking, especially given the city's favored status as a recipient of New Deal funding. Between 1936 and 1937, the Works Progress Administration (WPA) funneled one-seventh of its total monies to New York City, earning it the nickname of the "47 th state" among Washington insiders.
Ah, the joys of pregnancy! While some women sail right through it, others endure morning sickness, varicose veins and hemorrhoids, to name just a few common afflictions of that blessed state. And a history of eczema may add one more source of distress into the mix.
No matter how tired she is or how drained she feels after a long day at work, Shellie Rucinski never skimps on helping her 11-year-old daughter, Grace, with her nightly skincare routine. "A consistent routine helps Grace get through it when her eczema flares up," said Rucinski, an engineer with the Department of Energy living in Henderson, Nevada.
How am I ever going to talk to a girl, much less hold her hand? Am I ever going to go on a date? And even if I do, will she even want to touch someone like me? Will she feel ashamed to introduce me to her parents?
Following on the heels of Dupixent (dupilumab)-the first-ever biologic drug for atopic dermatitis (the most common type of eczema), approved by the U.S. Food and Drug Administration (FDA) on March 28-a second biologic may soon be on the way.
Even with top-notch health insurance, people living with eczema may end up spending a bundle on pharmaceuticals, skincare products and over-the-counter medications to find relief for their symptoms. It's a costly disease, but there is a way to manage your eczema on a budget.
By Margaret W. Crane As F. Scott Fitzgerald famously wrote in The Great Gatsby, "Life starts all over again when it gets crisp in the fall." Most of us welcome that feeling of a fresh start that comes right after Labor Day, so it makes sense that the Substance Abuse and Mental Health Services Administration ...
Advocacy comes naturally to Jill Lane, a woman who spent 10 years in the political fray, working on campaigns and fostering civic engagement at every opportunity. A political science professor at North Seattle College, Lane applies her gift for strategic thought and action to the everyday challenges her children face.
In 2008, Dr. Richard Aron, an established pediatric dermatologist in London and Cape Town, South Africa, hung out his electronic shingle, offering his own topical treatment for people living with eczema all over the world. He developed it years ago to treat pediatric eczema cases at his local office.
For more than 3 million children and adolescents living with moderate to severe atopic dermatitis (AD)-the most common and serious type of eczema-the worst words in the English language are "don't scratch."
Profile of a physician/scientist and alumnus of the Paul & Daisy Soros Fellowships for New Americans program
"I was told that the treatment might cause skin cancer later in life," he says. "At that point, though, I was willing to try anything, no matter what the risks." Before entering the PUVA study, Novsam had never felt comfortable letting others see his skin.
Atopic dermatitis runs in Anthony Trias' family. His mother has it, and so does his 6-year-old son Aiden. "The disease skipped me and our daughter, Avery, but it attacked Aiden soon after he was born," said Trias, who has moved heaven and earth to take care of his son ever since.
But, Tami says, light therapy seemed to do the trick. "Sure, we spent a lot of time in the doctor's office, but we also knew how lucky we were to have found an effective treatment." The Herlockers soon learned about a portable ultraviolet B (UVB) light panel designed for home use, and they wasted no time in purchasing one.
Forced to retire early because of his PsA, former diplomat Stephen Keat generously donates his time and money to NPF.
Special issue of NYU Medical Center's internal newsletter
NYU Medical Center's Dermatology Newsletter
Nutrition column for patients with Crohn's disease or ulcerative colitis
Celebrating the 125th anniversary of a historic black Catholic church in Harlem
Multi-author study of Crohn's disease and ulcerative colitis in chlidren